They have tested me for a lot. I asked for a list of what all they have ruled out and my doctor sort of laughed at me. So, I feel like you are highlighting a big concern of mine, which is that they are missing something obvious because of a communication issue with all the different specialists or it simply getting lost in the paperwork. I am going to ask for the cortisol test at my next appointment with my GP.

B12 absorption is the first thing that I thought was happening and the first thing that I asked about. I've been taking supplements for years and it always comes back almost double the standard range. My doctor told me to stop taking the extra b12 (outside of what I was already getting in my multivitamin) shortly before the acute symptom flare up. I've since gotten a new doctor and I've switched to sublingual and topical b12 just in case I am having an absorption issue. They insist that I am not having an absorption issue but I wrote down those two tests you mentioned to take to my doctor as well. I will have to take a moment to check out that link. Thank you!!

And Mitochondrial Diseases is the reason I am going to the geneticist (it is still a leading theory), but there is just still a lot that it could be.

And yeah living in the unknown is challenging, but there is always hope that, whatever this is, it is easily manageable or even curable. I don't think I received the pm or know how to check it?