I just thought I'd post a short update. There is a chance they might do a muscle biopsy at the University hospital. I would have to go for another appointment to be evaluated. The neuromuscular specialist is not sure I would be eligible for the test because my breathing function tests were so bad on the last visit. He is also not sure the test would provide any useful results. I think it is worth trying, although I would have to qualify medically for the procedure.

Meanwhile, I'm not doing that well, and I think I may end up in the hospital this week. My local doctors are discussing what to do and I will be in touch with them tomorrow. (sigh)

Sending good wishes to everyone out there who deals with all of this on an ongoing basis. Keep on keeping on!

Take care,
Erin