Quote:
Originally Posted by FREDH
I have been following you all along and had a question. You have probably mentioned this before, but maybe I missed it. Have you done plasmapheresis treatments. The IVIG did not work for me at all, but that did.
Best of luck
FREDH
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X2 same here for myself, I'm on a weekly Plasma Exchange/Apheresis now for the last 18 months, 78th exchange so far and keeps me a float, I was at one time doing a double wamie Plasme a.m. then IVIG p.m.and didn't see much improvement, IIVIG wasn't very eeffective so I stopped doing them, plasma exchange is much more effective but only lasts 6 to 7 days Max...I'm also on Imuran that took 8 mouths to kick in and was finally able to start weaning off Prednisone and that another story! I also take Mestanon.