Welcome to NT!

There are many people who are in limboland. I am sorry you are now in limboland.

The criteria for diagnosis has changed and recently many doctors are being more careful in diagnosing MS. They have found that people have be diagnosed with MS, started medication and later on it was discovered that they don't have MS but something else. Someone on the board posted an article about it and it was true. I have been diagnosed for 10 years, took medication for MS, and now my new neuro isn't 100% sure that I actually have MS. I do have the lesions and several of them are in the right spot and I have clinical symptoms but I have not had any new lesions in a number of years. He explained to me about people being diagnosed with MS and finding they don't really have it. He is a nationally known MS specialist and has trained many MS specialists so I do trust his opinion. For now, he is keeping the MS diagnosis just in case and I follow up with him every few months with yearly MRIs.

Keep track of your symptoms (date, how long they lasted, what they were, etc.) so that you can bring it to your next appointment. Obviously, if something major happens definitely call your neuro.

Keep us posted on how you are doing and if you have any questions. You will find the people here very knowledgeable and helpful!