Quote:
Originally Posted by DavidHC
Thanks for your note and concern.  But I've never had the ESR test. I have been negative for ANA and all other markers. It's not impossible that I have Sjogren's but I don't think the most likely. All testing was negative, my symptoms could just as well be from SFN and I'm male. I'm not sure I want to have a lip biopsy at this point with all this standing against the possibility, but I do plan to eventually see another rheumatologist. It's just that the one I saw was the leading specialist in Canada, but that may not mean much, since he seemed pretty set in his ways in some respects. |
Oops it must have been another NT user then David - sorry. I've been reading Wallace's the Sjogrens Book and the chapter on neurological features says that some people (47%) present with neurological symptoms long before the sicca (dry eyes and mouth etc) turn up and these people are often seronegative.
I do have rheumatic history but my ANA and immunoglobulins only recently turned positive. So I wouldn't discount SS as a possibility yet, although having nothing in bloods and being male makes SS less likely I suppose. But I know from personal experience that things can and do change so it maybe worth reading the Wallace book on Sjogrens and also his book on Lupus. Our symptoms do seem very similar indeed.