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Old 10-02-2016, 08:23 PM
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Thanks for the update!! Glad you are having a positive experience this early into treatment. I honestly don't know of many people pushing infusion intervals out to 6-8 weeks (even when doing good). The antibodies in IVIG have a half-life of only about 21 days...hence why treatments are typically scheduled every month.

It will be interesting to see if your symptoms start to return after the 4 week mark. I, personally, have increased pain the last week before my next infusion...right at the half-life (3 week) mark. It's NOT a horrible/unmanageable difference, but certainly noticeable. I can't imagine what I would feel like if I waited another 2-4 weeks before the next infusion. Talk to your doctor about this and what studies have shown for this treatment interval. It may work fine for some people, and not very good for others...after all, we are all different.

Please keep us updated.
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