Quote:
Originally Posted by bluesfan
Hi Mat
Was reading your discussion the other day on possible neurological symptoms connected to Sjogren's. This morning I was preparing some documents to take to my Rheumatologist appt. and came across an old printout from a few years back which discusses this topic so thought you might like the link - if you haven't already come across it.
Neurological Manifestations Of Sjogren's Syndrome by Dr. Steven Mandel, M.D.
Neurological Manifestations Of Sjögren's Syndrome
The article is by Steven Mandel, M.D. Clinical Professor of Neurology, Jefferson Medical College. It is displayed on the Sjogren's World website so thanks to them and the author for sharing. Hope it gives you some usable info.
BTW - my Rheumy is from Scotland and is the most caring, kind, open minded medical professional I've had to date - sorry Mat - Scotland's loss is NZ's (and my) gain. I hope you're able to find another just as good when your current Rheumy retires. Mine can't be the only good one to come out of Scotland - after all Scotland has a strong medical training history. All the best for making progress with managing the sjogren's. |
Thanks so much for this link Bluesfan - but being the geek I am I've already read it and saved it myself!
Okay I'm trying hard not to begrudge you your Scottish rheum. Mine has now gone part time and will be off by next month the secretary thinks. He's an old school detective type. Someone I know with RA told me he isn't popular with her RA friends because his bedside manner isn't good but I really liked him and he's been very kind to someone I know. My new GP says that every rheum in the hospital is excellent. It really is quite subjective and particular I suppose - like any relationship. But I do feel quite confident in the rheumatology at my new hospital.
However everyone I've met who knows my neurologist, be it neighbours, colleagues or mutual friends - and several patients - say that she is a highly dedicated, kind and lovely woman. She just wasn't with me! But I'm told by a nurse friend that I'm to give her another chance next week, as she was working on the wrong premise that I only had inactive RA. So I'm trying hard to keep the door open. But invisible armour is all ready too just in case she again tells me I'm making a drama out of very little, just "a bit of permanent numbness", over thinking everything and look too well to have a multisystem disease again!