Thread: LDN Help
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Old 10-10-2016, 09:36 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by BioBased View Post
Should I stay silent, when I know what worked for me, lest it upset someone? Should I have opted for a lifetime of pain management medications, instead of seeking a way to heal myself?
That's not what I mean. There is such a thing as talking of your own experiences. That's absolutely fine, but just trying to get everyone on board with the LDN, to me, is being a bit pushy. Like I said, not everyone's the same. And LDN might not work for us all.

Didn't they do all they could do for me? Yes. They did. And I am left with a disability, have been for 21 years now. Nothing more can be done, and it is not reversible. This is my doctors talking. Not me.

You don't know me personally, so that's one thing. You can't possibly come out and say, well if you just take LDN you'll be fine. Or took LDN you'd be better off. See. That's not up to you. And that's what I'm getting at.

Because it works for you, might not mean it will for someone else. I'm just trying to be a little conservative on that part. That's all.

And there is nothing wrong with how CRPS is being handled still for the most part. It is just a *very* disabling, and difficult disease.

Yes, we are all trying to find what works for us, but that doesn't mean LDN is the "hallelujah" for us all.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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