It's true that we have access to doctors who can run labs over here, but for complicated cases, we either have to give up and accept the drugs to mask/ manage the symptoms or do the research and hope to find doctors who will help. I don't think our cases are that dissimilar David. I think genetically certain people predisposed, but it all started in the gut. There is a lot of information pointing to autoimmunity stemming from the gut. My kids are functioning, going to school, ok. I feel that due to the fact that they are growing and have rapid cellular turnover, it is not impacting them as severely. At least that is my hope- that this is not progressive. It all started with stomach aches for years, pale stool, allergies, headaches... etc, then the neurological stuff. Something was thrown out of balance and causes an immune mediated disaster.


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