Perhaps you're right and our cases are not that dissimilar. I agree. I'm sure there's a genetic component for me too. I'm not sure if that has kicked in, if I've reached the point of autoimmunity yet, perhaps I have. What I know so far is that my gut is definitely implicated. And when the gut is implicated, genetics and the immune system can also be part of the equation. I hope I'm not there yet, but I can't tell. I'm going to try to heal my gut and see if that helps. I hope I'm not too far gone, that it's not progressive, so the same hope as yours. I'm glad to hear the positives regarding your children. They do have youth on their side, it seems.
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Originally Posted by Healthgirl
It's true that we have access to doctors who can run labs over here, but for complicated cases, we either have to give up and accept the drugs to mask/ manage the symptoms or do the research and hope to find doctors who will help. I don't think our cases are that dissimilar David. I think genetically certain people predisposed, but it all started in the gut. There is a lot of information pointing to autoimmunity stemming from the gut. My kids are functioning, going to school, ok. I feel that due to the fact that they are growing and have rapid cellular turnover, it is not impacting them as severely. At least that is my hope- that this is not progressive. It all started with stomach aches for years, pale stool, allergies, headaches... etc, then the neurological stuff. Something was thrown out of balance and causes an immune mediated disaster.
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