Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Good!!! So maybe now you can have some answers!
Usually if they stop the SFEMG, they found evidence of something. They would normally do a bunch of pairs of muscle fibers. And usually they do the forearm muscle as well as one by the eye.
It sounds as though your muscle was fatiguing, which is typical of MG (or CMS).
It's possible that you have either genetic MG (autoimmune) or one of the congenital myasthenic syndromes (it's not autoimmune, but a genetic mutation).
Uh, the MuSK is not only African-American women. Absolutely not.
You should hear soon from the doctors. I really hope you can have the appropriate treatment soon, both in terms of medicine and kindness.
Annie
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