Quote:
Originally Posted by AnnieB3
Is this the new "line" that is out there among neurologists? That Mestinon is the only drug necessary to treat MG unless we're in a crisis? Is this due to the one lawsuit when someone didn't have MG and they gave someone an immunosuppressant? Talk about an overreaction.
I've personally heard this recently as well. If this is the new stance of neurologists, then we are in trouble, guys.
If Mestinon is all a MG patient needs, then CoQ10 is all a cancer patient needs.
A muscle and nerve specialist is a neurologist. She probably meant a MG expert.
It sounds as though you aren't doing well, so it IS time for more treatments. Again, if you become so bad that you can't breathe, swallow, or move well, you need to be in an ER. Are you that bad now?
I thought they already had a plan in place for you. If not, I hope they will very soon!
Annie
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I was in ER 3 weeks ago. The ER doctor ordered some test for my heart, lung and blood test. Everything came out normal. Then he sent me home. I've still been having breathing problem since the ER visit. But it is not that serious to be in ER. I also have weakness in my arms and legs. But still they are not that bad yet. I have tooth infection that need to be extracted. I asked my neuro about it. She said Local anesthesia is ok for people with MG, and it is ok to have it done. I will have my tooth extracted this saturday. Still, there are some hesitations in my mind whether to have it done or not. It seems like my neuro does not know alot about MG.