This is the place for us to rant, so please don't feel sorry for doing so.
Being an uncommon disorder, it is not surprising that you do not know anyone that has CRPS besides yourself. Before coming on to this forum, I didn't know anyone either. I have made some friends here, even some outside of this forum, that deal with CRPS. Having somebody to be able to talk to that can relate to what you are going through has helped immensely with ridding that feeling of isolation.
I am glad that you have found a team of doctors that you feel comfortable working with. You have made some great decisions to retake control of your life again. I hope you know that there are a number of people here on NT that very much understand what you are going through, are willing to offer support, and hopefully can help you feel at least a little less isolated.
Many gentle hugs to you.

