Quote:
Originally Posted by MAT52
Thanks Bluesfan - I admit I lack the strength of will to do good eliminations although I was gluten free for five years but going g back on gluten has made no significant difference to me. I will read your link on BMS later - although I've already researched this because one of my sisters suffers badly from it too. They offered her the lip biopsy but she decided against because she deaf and needs her mouth to lip read. And more to the point, if they won't treat Sjogrens with anything more than Gaberpentin etc then really what is the point?
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I was gluten free for 2 years. I went back to eating it this summer. No difference here either.
Also, I had the lip biopsy done by an ENT in NYC I was sent to by my rheumatolgist. The swelling and recovery was terrible for me. Also it was done almost 2 years ago and I still have 2 numb spots. It came up borderline, or "equivocal". I wish I could go back and not have this done. All they offered was plaquenil anyway.