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Old 10-22-2016, 07:36 AM
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
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Quote:
Originally Posted by Starburst View Post
Do I really need this and will it change the outcome of my treatment? I was told that I would need a skin biopsy to see if I have neuropathy affecting the small nerves. I had reservations but now I've read what the biopsy entails, I'm even more horrified.

Local anaesthetic does not work for me at all and as a result, I've had some very traumatic procedures. Earlier this week, I saw a specialist in autonomic neuropathy who asked about local anaesthetic and said it's very common alongside my Hypermobility Syndrome diagnosis to experience what I describe.

I don't want to be awkward but neither do I want to cause myself distress and trauma. I have a history of....unpleasant things happening to me. I tolerate most things but I draw the line at having a procedure where the anaesthesia is not effective.


Just after some advice please. Thank you.
Hi, I can tell you that when I asked my neurologist for a skin biopsy he agreed to do it but said it would not effect the treatment regardless of the outcome and thus far it hasn't. It did give me confidence however that the diagnosis was correct. My skin biopsy showed me at <1 percentile of nerve fibers for my age group and my diagnosis small fiber neuropathy/ganglionopathy. Taking 2700 mg gabapentin daily. Hope this helps in some small way.
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"Thanks for this!" says:
St George 2013 (10-23-2016), Starburst (10-23-2016)