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Old 10-23-2016, 04:32 PM
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ElaineD ElaineD is offline
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Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
Default Primary progressive myoclonus of aging.

Does anyone else have attacks of myoclonus, which are like epileptic seizures in some ways?

I have been suffering from these for almost a year now and they are getting worse.

They happen when I stand up and try to move, mainly. My left arm jerks, some times my whole body jerks, and sometimes I have episodes of 'greying out' not a black out exactly, but then I FALL, hard.

This is a description and I meet all the criteria. I've had two EEGs that are perfectly normal, and yet I have these 'episodes' that are so scary and dangerous.

Primary progressive myoclonus of aging. - PubMed - NCBI

If anyone knows what I"m talking about, I hope they reply to give me some comfort that I'm not alone with this.

Right now I am on a large dose of gabapentin, for nerve pain. And Myoclonus can be a side effect, so I am tapering off as quickly as possible.

My neurologist doubts that it is the gabapentin and is prepared to try a medication to stop or slow down the attacks I have. This medication is: Valproic Acid. Does anyone know anything about this treatment?

I am feeling very vulnerable right now.

Regards, ElaineD
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