Does anyone else have attacks of myoclonus, which are like epileptic seizures in some ways?
I have been suffering from these for almost a year now and they are getting worse.
They happen when I stand up and try to move, mainly. My left arm jerks, some times my whole body jerks, and sometimes I have episodes of 'greying out' not a black out exactly, but then I FALL, hard.
This is a description and I meet all the criteria. I've had two EEGs that are perfectly normal, and yet I have these 'episodes' that are so scary and dangerous.
Primary progressive myoclonus of aging. - PubMed - NCBI
If anyone knows what I"m talking about, I hope they reply to give me some comfort that I'm not alone with this.
Right now I am on a large dose of gabapentin, for nerve pain. And Myoclonus can be a side effect, so I am tapering off as quickly as possible.
My neurologist doubts that it is the gabapentin and is prepared to try a medication to stop or slow down the attacks I have. This medication is: Valproic Acid. Does anyone know anything about this treatment?
I am feeling very vulnerable right now.
Regards, ElaineD