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Junior Member
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Join Date: Oct 2013
Location: AB, Canada
Posts: 48
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Junior Member
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
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3.5 years and ongoing
Hello,
I wanted to ask to see if anyone has any recommendations. I'm currently at a loss and have ongoing severe symptoms for 3.5 years from a motorcycle accident. Lightheadedness, brain fog, chronic fatigue, infrequent depression, etc.
I must say that I have made progress over the years, but my lingering and most debilitating symptom currently being extreme lightheadness when in any setting with artificial lighting, background noise, etc. When mental focus is required symptoms intensify to the point where I need to excuse myself for fear of passing out. My vision also narrows and I feel as though I have a hard time seeing/focusing on objects. This has been ongoing and happens consistently each time I am in a restaurant, shopping mall, etc.
I have been reading on dysautonomia. A possibility in my mind. I also think that inner ear is a large part of it. I have arthritis in my TMJ now (diagnosed) from the accident and causes clicking, popping, ear fullness, etc. My neck is also a mess. Constant discomfort, aches, cracking when moving it, etc. So many possibilities, single or multiple it's almost impossible for a person who isn't well and already has a hard time focusing to get to the root cause and docs are not helpful.
Any suggestions appreciated. Wondering if vision therapy is worthwhile, or if the source could be mostly neck related (one thing I haven't done is chiro - but wondering if safe given the extend of my symptoms/neck), or whether it's just a brain injury I will need to deal with for forever. I just wish I knew how to narrow down the main source of the issue so that I could focus on it. I have no idea what additional avenues to seek. I have been to several docs, tons of tests, etc. Most recent being another MRI 2 days ago on neck/brain. Waiting for results. Just about done with this sh***.
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May 2013 - Motorcycle accident. Hit head falling off motorcycle at 80-100km/h after hitting a median and knocked unconscious. Taken to hospital via ambulance. Partial loss of vision on the way. Cleared of any internal injuries at via CT and released.
May 2013 - Early morning upon arriving back from hospital, I started uncontrollably shaking (not a seizure), more so shock related. Paramedics to home and back to hospital. Cleared again and sent home.
August 2013 - Feeling normal and 100% better, I started to engage in normal activities, including full time work with no symptoms. I fell unconscious in my home, striking my head and waking up in a pool of blood and vomiting profusely. Noticeable trauma to face and nose upon waking up. Very nauseous and taken back to hospital. Cleared of any 'visible' injuries aside from superficial. Nausea and light sensitivity were very noticeable, to the point where I could not view a computer, or even TV. Approx. 4 weeks after the fall, I started to experience daily and extreme symptoms of dizziness, faintness, lightheadedness, nausea, tinnitus, neck stiffness/pain that has been present ever since. Some days are better, others very bad.
Tests include:
- CT x 2
- MRI x 2
- Neck x-ray
- Vestibular assessment (noticed a very slight left eye nystagmus.
- Physio for neck, jaw shoulders for 1.5 years (stopped in 2015)
- Heart holter monitor (24 hour)
- ECG
- Vision test
All tests yield no results and left with PCS diagnosis.
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