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Old 10-28-2016, 07:58 PM
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LovesTerriers LovesTerriers is offline
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Join Date: May 2014
Location: Omaha, NE
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8 yr Member
LovesTerriers LovesTerriers is offline
Junior Member
LovesTerriers's Avatar
 
Join Date: May 2014
Location: Omaha, NE
Posts: 29
8 yr Member
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Quote:
Originally Posted by Lurchy22 View Post
Hi, I have CRPS in my left foot and ankle resulting from multiple surgeries. My symptoms are burning toes and top of foot as well as deep crippling ache in my heel and ankle. I wrecked my other ankle and ended up requiring surgeries and the CRPS spread. I trailed a Medtronic stimulator a few years ago and was unable to get relief or the buzzing down into my toes. I just finished trailing the Nevro HF10 stimulator and have decided to go forward with the full implant.

Has anyone else with CRPS in feet/ankles had success?

We attempted to change my pain medication about three weeks before the trial due to some side effects I was having. Unfortunately, no other medicine worked and I wasn't able to get back onto my original meds until the same week as the trial. This made it very difficult to determine whether the relief was from the meds or the SCS. I was hoping that I would have an immediate return of discomfort after the trial but it didn't happen. Instead, it was a slow return but more importantly, I realized that during my trial, I was able to get up and move without the constant discomfort (different from pain) that I always have but don't really think about. The SCS did seem to lessen the burning but I expected it to be more of a black and white shut off of symptoms. Instead, it was almost a reduction at the subconscious level.

Does this make sense to anyone?

I really hope I'm making the right decision.

Thank you!
Please let me know how this works for you. I have CRPS in my entire left leg and in my rib cage/thoracic area. I am going to be undergoing a trial for the new BURST stimulator from St. Jude (it was just FDA approved a few weeks ago) and has been shown to be very effective in people with CRPS. I was hoping to try out the DRG, but I have a cage in my lumbar spine from a prior back surgery and they would not be able to get to the areas needed to cover my pain. Also, they are concerned about the SCS not covering my ribcage pain. If it does not work, then my last option is a drug pump, which I am not too excited about, but if it comes down to it, I may have to go with it, as I have exhausted all other pain relief options (including ketamine infusions).

Please keep us posted on how you are doing. I REALLY hope the SCS works for you!
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