Originally Posted by haywired

Hi all, Hi Littlepaw...

I tried to message you directly but couldn't figure out how to.. hope you'll see this - I'll say more about my story below, but was wondering, who did you find to write the Rx for you for phenoxybenzamine, Littlepaw? i read all the studies about it and it seems like one of the more promising early intervention treatments. I really want to try it, but the pain doc i saw wasn't biting when i asked about it.


I'm pretty willing to travel, make a million calls, spend money, etc, to try to stop this in it's tracks before more time passes. Even if it doesn't work, or if I don't actually have it, I want to sleep at night knowing i tried my best to intervene early.

so sorry we are .. all here. reading these threads has been really helpful and informative. some of the content here on neurotalk seems a bit more thoughtful and helpful than other forums i've come across.

the short version of my story is that I might have RSD/ CRPS .. I have all of the symptoms, and saw a pain specialist yesterday who said, yes, he thinks i have it.

Thankfully, i do not have the excruciating pain people talk about. I'm very grateful for this, but.. as I have all the other symptoms, terrified that that could be just around the corner if i don't act fast.

thanks a bunch for reading, and for any insight : ) < 3