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Old 10-30-2016, 02:08 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by en bloc View Post
Have you requested the ENT appt yet? If not you need to get on the books for that (since it will likely take a while to get the appt).

Is there any sounds that are soothing to you? Like nature sounds (ocean, stream, birds, etc). If so, get a CD of whatever you like (they make all of these) and put some earphones on and listen. The best way to treat hyperacusis is sound therapy. They have specific sound tapes for people with this condition, i believe. Ask your PCP if she/he has any ideas to help you until you can get into the ENT.

Sounds as if you could use some soothing sounds/music just for relaxation purposes, at this stage. Try to start focusing on ways to relax...warm (not hot) bath, quiet walk in a park, massage (only if it doesn't increase pain as it does for some with PN/SFN), etc, etc. Find things to take your mind off how you feel...movies, reading (a book, not medical related stuff online), crafts/hobbies, etc.
Thanks Enbloc. I'm going to do as you suggest because I'm encountering terrible insomnia from a flare of very painful SFN and other stuff too. Yes GP has now referred me to ENT but it will probably take a while to be seen -especially as I'm not living anywhere near yet -still up in island in far north for winter until our wee house is habitable.

I have worked out that the sense of impending doom is from another drug intolerance. I've been taking an anti-imflamnatory called Nefapam for the very severe SFN pain. This was a drug that my last rheum prescribed for my pain. It does work to some extent but comes with a sense of doom and horrible gastritis!
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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