Complex regional pain syndrome (CRPS)

Have you been seen by a Movement Disorder Specialist? It take months (four is not uncommon) for initial appointment, but I would do that first!

My dystonia responded to Sinement (levodopa) and would sound way too familiar to you.

Dystonia will release when you sleep, for me it would often wake me up. So I suspect during REM I would relase but as I cam out of REM it would return (to me I was asleep, but woken by my twisted foot).