View Single Post
Old 11-01-2016, 04:41 PM
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
Default

Quote:
Originally Posted by echoes long ago View Post
i have long fiber sensory motor axonal neuropathy. I have been getting that heavy feeling in my legs when walking any distance or when i tried to keep running over a decade ago. it feels like i am lugging around tree trunks. i also get the heavy feeling in my arms if i try to use them at or above shoulder level. jy hands also tire quickly but dont feel heavy! After 15 years i probably also have some small fiber involvement but have never been tested for that. it wouldnt make a difference in life style or treatment at this point to have it confirmed. Your electromyography (emg) nerve conduction study (NCS) may give you some answers as to whether you have any large fiber motor nerve involvement
Thanks Echoes. I'm fretting because I'm in for quite a long wait for my NCS as my neurologist wants me to see the consultant rather than only have the tests done. Could be a 3-4 months wait. So I'm left wondering if the tests are likely to show anything new because I had it done 20 months ago and nothing at all showed up. I think my lack of reflex response in arms is new and I think my arm heaviness on both sides is getting worse too. How is yours treated?
__________________
If you get lemons, make lemonade

Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
MAT52 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
St George 2013 (11-02-2016)