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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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Hi 4-eyes - I did the Rituxan last year and so far, it seems to be doing well. I'm trying to remember the protocol, but I do know they have been checking my levels every 3 months to see if I need additional Rituxan. So far, my levels are so low, they are not recommending any additional Rituxan and it has been almost a year and a half since my original doses. My mg has been under pretty good control. The only time I have had any issues was when I started having bad problems with my back (lifelong problems) and ended up in bed for about 2 weeks. My mg did not do well during the time my back was so problematic, but now that I am getting steroid injections in my back, the mg seems to be doing ok. I don't know why the mg would react to the back pain, but I see my neuro next week and I'm going to ask at that time.
Good luck with the Rituxan. I am very pleased with the results. Of course, I'm still on IVIG and Imuran; but doing much better with the mg overall.
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