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Old 11-07-2016, 10:06 AM
wendy s wendy s is offline
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Join Date: Sep 2006
Posts: 199
15 yr Member
wendy s wendy s is offline
Member
 
Join Date: Sep 2006
Posts: 199
15 yr Member
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My biggest difficulty in keeping my dopamine level comes from dyskinesia, so yes I would say I'm under-medicated in one sense. After eleven years on levodopa /carbidopa, I can't increase the dose because the dyskinesia becomes too severe. I walk a very fine line between not enough so I have freezing until the next dose kicks in, or taking enough so I don't freeze but end up with dyskinesia. My MDS told me a couple of years ago that he could help me with the freezing or the dyskinesia but not both. He suggested Amantadine but I'm not ready to put up with those side effects yet.

I'm becoming more and more dedicated to Dr. Alberts cycling program - it makes a difference in how long the meds last, and more interesting, it makes a difference in how mobile I am when I'm up at night. So it must be having some effect on how much dopamine I'm producing myself since I don't take any meds for about 12 hours from my last dose at 7:00 or so.
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