Junior Member
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Join Date: Jan 2016
Posts: 65
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Junior Member
Join Date: Jan 2016
Posts: 65
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For those with Sjogrens
So, I have not yet been diagnosed with Sjogrens and I was in a bit of denial that I had it because I don't have the traditional dry eyes, dry mouth. But I recently read a book about Sjogrens and it was like my entire life made sense to me. Chronic bronchitis, sinus infections, dry cracked lips, watery eyes, choking on food, anemia, chronically dry skin - MY WHOLE LIFE summed up. And now this small fiber neuropathy taking over.
Here's my problem: I don't have the antibodies and I have RA, so my rheumatologist is dead set on me not having Sjogrens. But I sincerely think I do. How do I fight her for a lip biopsy? Do I just need to get a new rheumatologist? I am so annoyed that I have to sit over here and diagnose myself while I worsen.
And what does treatment for Sjogrens look like as far as neuropathy is concerned. Do DMARDs really do anything for neuropathy? Is the only option IVIG? I just need a dang diagnosis so I can go forward.
Thank you!
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