Hi tj71

Welcome to NT.

By chance I just read another post by Mat52 which contained a link to an article relevant to your query. Here's a direct link to it:

The Fire Within

This may be useful to help convince your doctors of the need to investigate further - or if you're near John Hopkins go directly there. It's important with SFN to find a doctor who is familiar with the diagnosis and treatment - if you can screen them before making the appt. it might save time and frustration.

If you want to know more about other NT members experiences with SFN then you can use the search tool on this site (needs to be more than 4 characters - so search Small Fiber Neuropathy rather than SFN).
Feel free to come back and ask more questions or share your progress. all the best for finding some answers.