Disclaimer: this is my first post. I am 30 and just diagnosed with MG about 6 months ago, but have fighting symptoms for two years. I am brand new to alot of this stuff so please consult a neurologist and take everything i say with a HUGE grain of salt.

I am sorry you are having such a hard time. MG is ever changing condition and makes treatment very difficult as you know. I have a wife and two kids for which I am the sole provider. I know that burden can be very difficult to bear with a disease like MG. Please take heart knowing there are several companies working for a cure. I know one company in Germany is working on their first set of human trials. I am very hopeful a cure will be found in my lifetime.

I too am in a very high stress job. Stress is a MG trigger. I am currently considering whether or not I need to find a less stressful job. Even though pay may be less, it may improve my health. This may be a step for you to consider.

Also, I am currently only taking Mestinon Time Span and regular Mestinon. I am currently taking 1x 180mg Timespan in the morning and 3 to 5 x 60mg regular Mestinon in 3-4 hour intervals. Now, I'm a big guy, but my understanding is that does is not too large. I have never tried anything else, but have seen a huge reduction in symptoms. I know you are on several other medications, but to me a much higher dose of Mestinon may be needed.

Maybe unrelated, but I also take 2x20mg of Adderall daily( though I recommend Vyvanse) for ADD. However, considering the stimulate nature of the drug, it helps me greatly to overcome my MG symptoms to get through my day.

I have not researched this at all, but I wonder if reporting MG to an employer as a disability would help at all. This would help protect your job. I know with people with Narcolepsy, naps can be prescribed and employers must provide you with time and space to do so. Or it maybe that they provide you a designated teacher's aid to assist you so you do not get bogged down.

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