Quote:
Originally Posted by MAT52
The bad news is that, apart from Plaquenil, there are usually no treatments offered for Sjogrens apart from topical ones and symptomatic nerve pain meds. I know that this is a great source of misery for many sufferers and things do seem to be improving in the US - with Sjogrens World Foundation and Dr Mandel's excellent articles and Professor Birnbaum's work at the John Hopkins. But I am not sure this has yet filtered out across the international rheumatology or neurology communities yet.
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I am diagnosed with "borderline" sjogrens as the cause of my full body neuropathy. I had the lip biopsy and now 2 years later still have a numb spot in my lower lip. I agree with the bad news of plaquenil being the only other autoimmune treatment offered. For this reason I wouldn't recommend the biopsy. I decided not to try the plaquenil due to the fact that I have no swelling at all, and that seems to be what it is helpful for. I might change my mind at some point, but for now I continue to try for other opinions and options.