Quote:
Originally Posted by Healthgirl
I'm thinking that if you have scn9a, that a sodium channel drug would be the only option, no? Why does your doc want to do carbamazepine? Just curious, as I am still coming to terms with the possibility of daily meds. I'm waiting for this scn9a test result as well. It should be back any day now. Lets update each other.
|
You are right...it would be a sodium blocker. I may have misunderstood what he said. I will let you know my test result (which can take a couple months) and also check the name of the drug. Is it your understanding that IVIG does not work for hereditary neuropathy? That's my understanding. Sodium channels blockers seem to have a lot of side effects from what I have read. I am approaching 3 years of full body neuropathy so I fear the damage is already done. My bloodwork and tests have all been normal but not everyone tests positive for antibodies. Glad to share any information that might be helpful.