Quote:
Originally Posted by Summerfun
You are right...it would be a sodium blocker. I may have misunderstood what he said. I will let you know my test result (which can take a couple months) and also check the name of the drug. Is it your understanding that IVIG does not work for hereditary neuropathy? That's my understanding. Sodium channels blockers seem to have a lot of side effects from what I have read. I am approaching 3 years of full body neuropathy so I fear the damage is already done. My bloodwork and tests have all been normal but not everyone tests positive for antibodies. Glad to share any information that might be helpful.
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Do you have this kind of neuropathy in your family?
I do not, but we have some autoimmunity. They suspect something triggered me and my daughters at the same time, but don't know what. I'll report back what my genetic results as well.
How did yours come on? I had autonomic symptoms for a year and then it blew up in to full body painful neuropathy. The doctors have been useless besides one who helps me through with pain meds.