Quote:
Originally Posted by Blackfeather
I searched the internet looking for a report of someone who is using nilotinib off label with favorable results. Outrside of the GT trial, I haven't been able to find any. I know some pwp must have tried nilotinib, but if so they don't seem inclined to report.
|
I have spoken with a number of PWP who are taking nilotinib off-label. The large majority have said they are seeing improvement, some more than others. One person said they had to stop because of side effects.