It has been rough. I have been flaring for the last 2 weeks. I started IV antibiotics a few weeks ago, which insurance is covering since they deemed my case is serious enough to warrant them. My iSpot retest came back positive and that was what BCBS needed to prove that I failed oral abx.

So I'm not sure if the meds are kicking my butt or if it's the change in weather. I have been in full body burn mode and my face has been leading the charge. Is anyone else in a flair right now?

On a positive note, with this new treament, my atypical face pain has been starting to disappear. I hope it stays gone.

I've also been working with a vestibular specialist who believes that the nerve in my ear was damaged even through my ENT testing didn't show much. She wants me to keep after my PCP and/or neurolgist and try to get them to approve IVIG.

I'm just taking this one day at a time..... I hope you are doing well.