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Old 11-18-2016, 07:27 AM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by Starburst View Post
Do I really need this and will it change the outcome of my treatment? I was told that I would need a skin biopsy to see if I have neuropathy affecting the small nerves. I had reservations but now I've read what the biopsy entails, I'm even more horrified.

Local anaesthetic does not work for me at all and as a result, I've had some very traumatic procedures. Earlier this week, I saw a specialist in autonomic neuropathy who asked about local anaesthetic and said it's very common alongside my Hypermobility Syndrome diagnosis to experience what I describe.

I don't want to be awkward but neither do I want to cause myself distress and trauma. I have a history of....unpleasant things happening to me. I tolerate most things but I draw the line at having a procedure where the anaesthesia is not effective.

Just after some advice please. Thank you.
HI Starburst,

I found the skin biopsy quite uncomfortable, it was the local anaesthetic injection mainly.
Having that diagnosis has been helpful in accessing a trial of treatment. Also, it has supported my health insurance claim. More importantly it affirmed in writing with no room for error what is going on. I feel like I am often doubted, I've had anxiety thrown at me as a cause of the pain I described and a recent suggestion of psychosomatic with regards to other issues I now mention. For me it was essential I had this proof.
If you have a clear diagnosis without the biopsy then that is great.
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"Thanks for this!" says:
Sophie0513 (12-13-2016)