Thread: Nhs
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Old 11-19-2016, 03:47 AM
vickypanda vickypanda is offline
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Join Date: Jun 2016
Location: East Yorkshire
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vickypanda vickypanda is offline
Junior Member
 
Join Date: Jun 2016
Location: East Yorkshire
Posts: 23
5 yr Member
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Quote:
Originally Posted by pingpongman View Post
I find it interesting that your daughter also has MG. My mother had MG and my sister and I have it. But so many Drs will tell you it's not inherited.
Mike
My auntie also has it which is why I requested the tests for it when I was having all my eye problems that I had had for 5 years they only agreed to give me a blood test to rule it out ! I had had trouble swallowing all my life I just thought everyone had the same thing I then started with slurry speech and mixing my words up croaky voice when talking also something I had had for years. My daughter hasn't been healthy or fit from been a toddler but the Drs were never interested on the many visits to the Drs telling them something was wrong. When I was diagnosed I decided to push for the same tests for her and her positive achr blood test was higher than mine, now almost a year down the line she is struggling more and more with her symptoms and slowly developing other symptoms hopefully she will be allowed to go on mestinon, it has certainly helped me .
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"Thanks for this!" says:
pingpongman (11-19-2016)