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Originally Posted by Jane1
Man oh man. I have issues. The biggest being my eyes are still seeing double and blurry, so I can't see how to start a new thread. I had more blood labs testing for myasthenia and Musk. All tests came back negative. I am taking 60 mg mestinon 3 times a day. The swallowing difficulties are much better and my eyes are better until after lunch. Then I begin to see double and things appear blurry. I have asked the neurologist to refer me to a neuro ophthalmologist. I feel tempted to quit taking the mestinon and go about my merry way, but not being able to see well in the afternoon and evenings is driving me crazy. I also can't drive at night or for much longer than 45 minutes. Rant over and so discouraged
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Hi Jane, Please get in touch with a doctor who will treat your MG correctly. Many people with MG do not have the positive blood test and still present with the disease. My hubby had severe double vision, met with the neuro ophthamologist and was put on a regiment of Cell-cept. Mestonon will NOT help double vision...it only works fro the droopy eyelid. He was on both for awhile, and now is doing fine with just the cell-cept.