Quote:
Originally Posted by en bloc
I had MRI's and they didn't show any type of atrophy...yet the muscle biopsy did. I don't think MRI is capable of seeing all types of atrophy.
The muscle biopsy wasn't a big deal. yes, it is invasive, but healed quickly and had no lasting problems (unlike the the nerve biopsy and permanent sensory loss).
I had signs of muscle wasting in my legs...that is why he did the muscle biopsy. They already wanted to do the nerve biopsy due to neuropathy and numbness. It didn't dictate any particular treatment, but added information to the bigger picture...confirming the wide spread neuropathy.
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Thanks enbloc. I believe that the MRI is seriously flawed as I have lost two clothes sizes worth of bulk. I know that you receive ivig. Do you feel that the atrophy has been controlled or managed via treatment in any way? I worry they would pick the least affected muscle for biopsy. I also worry I will go through it and they just have a so what attitude and send me home with no options if it is demonstrated.