Originally Posted by ErinBear

I had a muscle biopsy almost a month ago at a University hospital here. It was a bit of an adventure, as I had some trouble with the anesthesia. It was supposed to be an outpatient procedure, but when I woke up, I was very weak. I had trouble breathing, swallowing, and walking, and had to stay in the hospital for two days. However, the biopsy did not show anything particularly helpful, and they still do not have a diagnosis. So at this point, the neuromuscular clinic is done seeing me as a patient. I will continue with my local neurologist, doing the treatment we are doing now. She thinks we need to add something more to the regimen, but to do that, we needed a diagnosis and treatment recommendations from the University hospital. That's the end result. I'll just have to try to keep coping with it as best I can, I guess.

Best wishes to everyone else out there who struggles with issues which seem like myasthenia gravis, but don't have a diagnosis. It's a challenging thing. My thoughts are with everyone here in this group, whether you have a diagnosis or not. Keep hanging in there, and keep taking good care of yourselves.

Take care,
Erin