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Originally Posted by JoannaP79
Thanks enbloc. I believe that the MRI is seriously flawed as I have lost two clothes sizes worth of bulk. I know that you receive ivig. Do you feel that the atrophy has been controlled or managed via treatment in any way? I worry they would pick the least affected muscle for biopsy. I also worry I will go through it and they just have a so what attitude and send me home with no options if it is demonstrated.
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My atrophy is very well controlled and almost non-existent now. I am gaining strength too. I have to say the IVIG has helped with all this since I have improved so much since starting the higher dose (for neuropathy). I am even involved in equine therapy now to further improve my core strength and balance.
Are they considering a needle biopsy or open biopsy? I had an open biopsy (actual incision). They typically chose a muscle in a problem area, but discuss your concerns with the doctor ahead of time.