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Originally Posted by LouLou1978
Hi there. Happy to talk about my story. They do not think it was gbs now. They believe it is inflammation which seems to fluctuate. I feel o.k about 80% of the time but having another flare this evening. Have you had the skin biopsy yet?
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Thanks for answering loulou :-). I did not. Actually I have been seeing a neuro during one year after the onset of my symptoms. He didn't tell me anything. I then suspected SFN by looking on the Internet. But I did not look further as it was just like you feeling well 80% of the time. But my last flare led my to take a new appointment with a good SFN specialist. One month from today. I guess he will ask for the skin biopsy.
Like you is seems to come and go... You're lucky to have found a good neuro. Mine was average and it was like if it was not written in his neuro book, then it didn't exist. I told him about possible sensory only GBS and it told me that It didn't exist. Crazy lack of curiosity. I thought doctors wanted to be doctors so that they can help people and dig deep if necessary... Well... Not everyone
Do you have any meds?