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Old 11-24-2016, 10:18 AM
LouLou1978 LouLou1978 is offline
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Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
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Quote:
Originally Posted by NicoAvA View Post
Thanks for answering loulou :-). I did not. Actually I have been seeing a neuro during one year after the onset of my symptoms. He didn't tell me anything. I then suspected SFN by looking on the Internet. But I did not look further as it was just like you feeling well 80% of the time. But my last flare led my to take a new appointment with a good SFN specialist. One month from today. I guess he will ask for the skin biopsy.
Like you is seems to come and go... You're lucky to have found a good neuro. Mine was average and it was like if it was not written in his neuro book, then it didn't exist. I told him about possible sensory only GBS and it told me that It didn't exist. Crazy lack of curiosity. I thought doctors wanted to be doctors so that they can help people and dig deep if necessary... Well... Not everyone
Do you have any meds?
Hi there I take amatryptoline not sure how you spell! Also lyrica. When I was going through my very painful phase both of these drugs helped .I still take them but pain comes and goes. Comes on more with stress. It is fluctuating inflammation. If I feel I am progressing will try the trial of ivig but for the moment I manage well on the pain meds. Good luck and keep us informed.
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