Hi Dan

Welcome to NeuroTalk.

One thing that you wrote struck me: "Hereditary idiopathic neuropathy".

Do any members of your extended family have similar clinical signs to yours? If so, you could contact them and find out what clinical investigations (including genetic?) and treatments they have had.

You could then (with their permission of course) pass that information on to your health care team - that could help you.

All the best.