Thank you for the information . I was beginning to think people thought I was crazy and that was why no one was responding. I hope you don't mind me asking but have you ever heard or come across anyone that did not have the arm swelling but had bilateral shoulder swelling (where the brachial plexus is I believe) instead? I haven't been able to find much information on it and wasn't sure if you or anyone else had heard of anyone like that. Thanks again! You'll have to forgive me if this posts twice I tried posting it a min ago and it never said anything about it needing to be checked first or showed up.