Hi everyone.

This is my first experiences with support groups.
Earlier this year I received a confirmed diagnosis of atypical NBIA.
A couple of months ago I was notified that my DNA revealed I do not have NBIA. It is a neuro degenerative disease but they are not sure which one.
Having been in the hospital and undergone extensive testing I have decided to step off the merry go round at least for now - no more testing.
I am wondering if anyone else is in a similar circumstance with diagnosed neuro degeneration.