Hello Lonepine: Welcome to NeuroTalk! I hope you find the time you spend here to be of benefit.

I'm sorry I cannot comment with regard to your condition. You might want to consider re-posting this in one of the other forums here on NT. I'm not sure which one would be the most applicable. You can look through the list of forums & see what you think. One option might be the General Health Conditions and Rare Disorders forum:

http://www.neurotalk.org/forum2/

Perhaps other members, here on NT, may have other suggestions.