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Old 07-12-2007, 10:48 PM
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
Member
 
Join Date: May 2007
Posts: 270
15 yr Member
Default How Long...???

Yes, the stories shared familiar, and the issues, concerns, Questions esp. "how LONG??" evoke fear, frustration, and more... When [you] don't, aren't healing as "should"; when you know this isn't right, when medical pro's are dismissive , misinformed, misguided, Miss ..the issue , while [you] Miss Life , as it was before, hope it will be again , while struggling to get thru each day, hour, minute....
all those horrible feelings and experiences .... terribly familar....

my last "mild" TBi that resulted in PCS occured Dec. 2006. Not my first TBi but seems THE one that created more problems & many dysfunctions, esp. Cognitive, perceptual, Behaviorial,emotional, along w/ physical {persistant & severe headaches, visual & other sensory disturbances; Sleep disorders & more) -- slowly improving...

This last TBI got the most attention & "treatmt"...but most of the medical interventions NOT as successful as hoped, nor provided when most needed, when I felt worst, was most dysfunctional.

Besides my PCP-I went to neurologists, and other specialists . Physiatrist-Dr of Physical medicine & Rehab--"brain injury specialist--one I'd put most hope in, was most frustrating. he was very drug focused, and when I didn't respond well to meds he prescribed , said he couldn't help me. PT & other therapys had been mentioned, but were not "prescribed". He did refer to NeuroPsychologist for testing & possible neurofeedback but did NOT occur when most needed.
When I was most affected by PCS symptoms & problems, extremely dysfunctional & despondant that I didn't want to live, to go on--was too hard & frustrating, overwhelming... I'm more hopeful now, but are still challenges.

still waiting for appt. w/NeuroPsych
and continue to educate & inform self whle seeking more treatmt options & "self help" to progress thru this process of healing.

I'm not sure when improvements commenced --I felt stuck for long period & began to doubt but gradually more positive and improvements continuing. but still affected --memory, & other cognition; fatigue & sleep issues and more-- not all is healed and some may not-- I do feel I won't be same as Before TBi accident --but which??

My first TBi was 12 yrs ago --when I was hit by car as pedestrian. Since, many problems, "neuro' issues including episodes of drop attacks; originally thought Seizures but tests ruled out; these falls have resulted in several additional "mild" head injuries & concussions. Question: What's cumulative "damage" of multiple TBI ??

I've been dealing w/ chronic pain disorders since pedestrian accident; some problems exacerbated w/ last concussion, others began.
Bladder control, sleep disorders, headaches, visual & other sensory disturbances. I continue to be hypersensitive--to noise- doing better w/ light. Photophobia --kept me out of sun , bright lites, w/ shades drawn. now I 'm beginning to go outside more, but still limited. I couldn't wait for spring, summer but haven't been able to enjoy these seasons, or Life in general, but, gradually am getting back to living not just surviving .

How Long?? will see... it is a process. still plenty of downs, but now feel more hopefull, that I can " heal "

Healing is unique process... and Prayer ... to have the Courage to change what I can, Accept what can't & Wisdom to know the difference...

Prayers & Blessings to all....
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Soccergal (03-21-2011)