Quote:
Originally Posted by Mz Migraine
Discussing w/an atty is probably your best best if you are having trouble talking to a "human" when calling SS.
If you go the atty route, make sure atty specializes in SSDI cases only.
I would also discuss w/atty regarding setting up some sort of trust fund for your daughter's future to care for her after you & hubby are no longer around to care for her.
Do a Google search: "Special Needs Trust"
Loads of info.
Again, your best bet would be to deal w/an atty.
GOOD LUCK & HAPPY HOLIDAYS! 
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I put a call in, he is out of the office. I am almost afraid to hear the answer after all this stress. He worked 20 years for Soc Sec before becoming an attorney and specializing in SS cases so if anyone would know he should....But why wouldn't this have been important to mention during the process at some time? (Rhetorical question)