National Parkinson Foundation Parkinson.org has a forum for DBS.

Thankfully in Austin, TX we have a "DBS support group" that meets monthly. Went last week, small turn out due to Holidays but glad I went.

Six weeks out after surgery. Honeymoon period has warn off, adjusting to the new me. Left hand ZERO tremor, right hand is very stable tremor at times.

Dystonia no longer an issue. Have not had any foot dragging or freezing (!!!). I can button a dress shirt on a bad day.

Currently at much reduced medication. My "on/off" transition is very mild (amazing).

Long journey to go, so far all it good. I was feeling too good and returned to exercising too soon. Brain swelling is real, so take it easy for six to eight weeks after brain surgery.