All I can say is I understand. I am alone with the exception of my wonderful dog and it is difficult. Not having someone to talk (to vent to) makes it even more difficult to deal with and I tend to focus more on my pain. I have started meditation which helps for the short term....it keeps my mind quiet. I have been doing yoga for quite some time now and that helps me. It seems we have to find something we like that we can do that helps keep our minds occupied. The doctors don't get it. I don't know what wil have to take place to bring this horrible disease to the forefront. But something WILL happen....hang in there.