Quote:
Originally Posted by JOYL5
I am so pleased to have found a relatively active forum about this disease after searching the internet= would any of the members on this page please contact me.....my son has just been diagnosed. =Sept 2016.
|
I have had the condition for the same condition for the last 5 years with no reprieve but the condition seems to get worse, with more pain in various extremities of the body, fingers, and feet.
DRs tell me that there is no cure for the condition. I have tried food diets, acupuncture all to no avail.
If your son gets any help please let me know too.
I am going to see an neurologist on 29 Dec I will inform you of there is anything of interest.